Praise God. We are in shock. The doctors are in shock. Our little Sadie, though she may not realize it, has experienced a miracle. In order to get a more updated visual Dr. Lautz, Sadie’s surgeon, ordered a CT scan today before her scheduled surgery on Monday only to find that her AVM has shrunk significantly. Sadie’s once massive AVM consuming 1/3 of her little liver has SHRUNK to consuming a mere 5%! NO MORE SURGERY ON MONDAY!! He is very optimistic she won’t need any procedure at all. Sadie’s situation was already rare; now she’s redefining what the medical field knows about AVMs. AVMs were previously believed to never go away on their own. Dr. Lautz said medical experts used to believe that AVMs and hemangiomas were completely different, but are now realizing they share many of the same properties and might in fact be the same thing.
We will follow up and get an ultrasound in 6 months. The doctor has some more consulting to do with his team and other doctors internationally. Dr. Lautz says Sadie may be in some case studies in the future. As for us, we’re speechless. Thank you EVERYONE who has prayed for our little girl. God is always good. God is always listening and God is still working through His people and their prayers.
During our last visit, Sadie’s surgical team wanted updated images to plan her surgery and to make sure nothing has “drastically” changed since August. The CT scan is scheduled for this Friday, January 22nd. Sadie will be sedated using general anesthesia and will need to be monitored for 12-24 hours afterward. We will be staying at Ronald McDonald House near Lurie Childrens (RMHLC) starting Thursday night and could be there as late as February 2nd, depending on how well she recovers from her surgery on Monday, January 25th.
Thank you everyone for all your prayers. You have been so encouraging and we have seen God’s love through you all. We will do our best to keep you up-to-date through here and/or on our Facebook walls.
Today our little family met with Dr. Lautz, Sadie’s liver surgeon, to go over all the details related to her surgery on January 25th. He explained that when it comes to liver surgeries like her’s they look at the liver in 4 quadrants. If there are any abnormalities in a quadrants that they go ahead and remove that entire section of the liver. That being said, they will be removing half of her liver even though her AVM consumes just one-third. We will return to Lurie’s one more time prior to surgery to get a CT scan done so that the surgical team can plan her surgery thoroughly and to make sure no “surprises” have developed since her MRI in August. As we get closer, mommy and daddy are getting more nervous. We thank you for all of the encouragement and prayers the past 5 months and ask that you please continue to pray for all three of us.
Other information regarding surgery:
- The liver is the only internal organ that possesses the remarkable ability to regenerate. It is known that as little as 25% of the original liver can regenerate back to its full size!
- Sadie’s surgery will take 4-5 hours and will happen early morning.
- Recovery could take as long as a week, but we could be out of there in 4-5 days.
- 80% of children are admitted to the normal recovery ward after a surgery like this and 20% are transferred to ICU.
- There is a 50% chance Sadie will need a blood transfusion so a central-line I.V. will be put in. Again, normal for a surgery like this and because of her size.
- With any abdominal surgery like this, there are feeding restrictions. She will not eat anything for 1-2 days following surgery but will be supplemented through I.V.
- In April we will meet with a genetics counselor to see if Sadie has a blood disorder called, Hereditary hemorrhagic telangiectasia (HHT). HHT leads to abnormal blood vessel formation in the skin and often in organs such as the lungs, liver, and brain. We will also learn if she needs any more tests done to rule out AVMs in other parts of her body.